I might always have a smile.
I might seem to be achieving things that you can’t imagine doing.
I might seem to have courage.
I might seem to be okay.
But I am not.
My body aches from years of lifting another person.
My smile is fixed because it is easier than sharing my truth.
Not doing things isn’t an option, so I keep doing them.
I am tired and filled with fear.
And I try so hard to look okay.
But I am not.
I fake that inner strength.
I fake that smile.
I fake the ease with which I do things.
I fake the courage to keep going.
I fake being okay.
Not because my son is disabled.
But because he is disabled by facilities!
I am tired of battling for inclusion in life.
Tired from seeing him on the edge of life.
Tired from towns and attractions having no toilets he can use.
Tired from years of seeing him hurt.
Tired from knowing how many others share our struggles.
Tired from feeling that I am failing my son.
Tired from all the tears I have shed.
Tired from all the tears I hold inside.
Shouldn’t accessible toilets for all just be something we all expect?
Is THIS really too much to ask of councils and tourist attractions?
A ceiling hoist and a changing table in the same room as a toilet and basin.
The monkey is not essential.
Changing Places toilets are not new.
Hoisting equipment is not new.
Disabled people are not new.
This awful indignity is not new.
And it will continue into another generation of people unless we act now.
I don’t have all the answers, but I know that I have to try.
And I cannot do it alone.
Please try at least one of these.
You could write to your MP to ask why Changing Places toilets are not mandatory in any building or development in this country. Merely being a “recommendation” is not enough. Find your MP HERE.
Sign the petition set up by my fellow campaigner, Lorna Fillingham.
Share any posts you see online about Changing Places toilets. Yes, I know it is boring, but when change happens we can all stop talking about toilets!
Some things are just wrong.