Yesterday there was no blog post. There was just a day where it all became too much. Too much to think about, let alone to share. Yesterday we made one of our frequent journeys to a hospital appointment almost 200 miles away. We were very fortunate to only be travelling this distance as the person we were seeing… Continue reading Life has to be worth living
Dear Trustees and Director of Hall for Cornwall, I attended our lovely theatre last night and had a wonderful evening. Bill Bailey was fabulously entertaining and my cheeks ached for some time due to the hours of constant laughter. My seat was comfortable, the ice cream was tasty, the bar was welcoming. During the interval… Continue reading Make it so, Hall for Cornwall, make it so!
A few weeks ago Adam and I planted some sunflower seeds. We watered them, kept them out of the wind and watched them grow. When they reached a couple of inches in height we made a start at transplanting them into bigger pots. And then life happened. We transplanted some but not all. Just… Continue reading How does your garden grow?
Really? You went to the zoo without calling to ask if they had a toilet your child can use? And to the theatre? And when travelling on the motorway? One of the biggest difficulties you face when you cannot get out of your wheelchair without a hoist is that you can’t just go out. Because once… Continue reading You didn’t call ahead???
Now, I am sure your mother always meant well but I am guessing that if you ever saw someone with a disability she told you not to stare. Great advice! Never stare. Unless it is longingly into the eyes of a loved one or maybe if you spot Tom Hardy when out. Don’t look! Well, it… Continue reading What your mother didn’t tell you…
If you have not already come across Crowdwish you really should check them out. http://www.crowdwish.com Ordinary people post their “wish” and everyone gets the chance to choose which wish they would like granted that day. A couple of days ago I posted a wish. I wish for fully accessible toilet facilities with a changing bench and… Continue reading Crowdwish
If it takes a village to raise a child then it really does take a large town/small city to raise a child with disabilities.
Adam is just a boy, like any other. He likes his friends, enjoys playing Minecraft, is quite bossy and loves to be active.
That last part is where life can get difficult. For being active isn’t easy when you cannot sit up on your own, let alone when you can’t stand or walk.
So we have a few extra challenges to face.
And we face them every day.
Last year was a difficult year for us. Adam was recovering from surgery and I suffered an injury which stopped me from doing almost everything. This year we want to get out there and live life to the full.
It is going to involve making a few changes in the wider world.