I have debated putting this in writing as I would never want my son to feel responsible in any way but caring has triggered health problems for me which are probably never going to end. Years of lifting my son’s wheelchair into the car. Years of lifting Adam into the car, onto the toilet, into bed, onto the… Continue reading What cost to carers?
Month: July 2016
Does your business provide the best possible service?
This is what I would like to ask every major service provider. Service stations, major supermarkets, local attractions, restaurants, hotels etc. all like to advertise how great they are, how high their standards are and how they offer “the best” to their customers. Yet there is one area that virtually all these places don’t seem to… Continue reading Does your business provide the best possible service?
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Lands End Update… I will be back!
This afternoon I received telephone call from one of the Directors at Lands End. Contact at long last is good and I am pleased that they responded but I still feel that there is a lack of true understanding. (that might just be me, after all, I do feel this deeply) He did apologise that I felt… Continue reading Lands End Update… I will be back!
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Is equality worth the cost?
Disabled people are not new. They have not just appeared suddenly. They have been there all along. You just might not have seen them. We stopped visiting most local attractions a couple of years ago when stopped being able manage our son’s toilet needs in back of our car. Now, all that stands in the… Continue reading Is equality worth the cost?
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Radio, TV, good news and Lands End
This last week has been a whirlwind of a week! I have taken part in a radio interview and filmed with local BBC news. It was utterly nerve-wracking and I have been glad to have a quiet Sunday at home with the family to recover from the stresses. Unfortunately, I did not download the TV… Continue reading Radio, TV, good news and Lands End
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Lost Gardens of Heligan – FOUND!
Yes, I know they were found back in the early 1990s but WE have not been able to visit. They have remained lost to us. Late this afternoon I came home to this awesome response to my question on the Facebook page of The Lost Gardens of Heligan. I had posted my blog post “Can… Continue reading Lost Gardens of Heligan – FOUND!
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Can I be a 1st class citizen too?
Disabled people have long felt like they don’t matter. As a parent of a disabled child I feel it every day. It hurts EVERY DAY. Reading it online from the Equality and Human Rights Commision Chairman didn’t come as a shock. It just told me what I already knew, but it didn’t stop it hurting.… Continue reading Can I be a 1st class citizen too?
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Summer fun?
I admit it, I dislike the long summer holidays. Yet my son is home educated and I am used to being with him most of the time so why on earth would a six week school holiday present a problem? It doesn’t. Not really. Most of our routines will continue. We still see our fabulous circle of home… Continue reading Summer fun?
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Aching Hearts and Monkeys
On July 19th 2016 the Changing Places campaign will mark 10 years of campaigning. Just a few weeks later the Ordinary Boy will celebrate 10 years of being here, lighting up the world. Just where should we go to celebrate this momentous day? Hmmm… I know many places that he would like to go. He has… Continue reading Aching Hearts and Monkeys
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Lands End is not for everyone.
Sadly not. We wanted to go. They even let us in! Unfortunately, we could not stay due to my nine year old son needing the toilet. My son has some extra needs to the rest of our family and the toilet facilities at Lands End were woefully inadequate. So I wrote to them. I explained… Continue reading Lands End is not for everyone.
Ordinary Hopes 