The ‘Equality Bus’ is not coming. It broke down many miles away and no new service is planned. All those who wished to board are asked to wait patiently. There are plans to consider getting it moving at some point, but probably not this year. Maybe not next year either – it is, after all, a complicated business! I keep… Continue reading Good things do not come to those who wait, and wait, and wait…
I hate it when people say that to me. I know they mean well but it feels as though they are saying there is nothing unusual or difficult about my son’s life. When there clearly is. Sometimes I am sad about the things he struggles with. Sometimes I am sad that we can’t just go out… Continue reading “What’s ‘normal’ anyway?”
The boy had a chair ◊ and short funky hair, And snazzy blue shoes ◊ which he just loved to wear. How the boy laughed ◊ and how the boy grinned, As he raced in his chair ◊ and moved like the wind. And how the boy wailed ◊ and how low the boy sat, The need came so wildly… Continue reading Is there room in your loo for a boy like me?
I have this little boy called Adam. He is very sweet and very kind. He is loving and giving, And scared of many things. Because life has shown him a harsher side than it shows to most 10 year old children. He has had many surgeries. He has known much pain. He has cried with… Continue reading Children should not be scared to go out.
“Have they got a bathroom I can use?” Today we ventured out for lunch with friends. We did everything we could, we timed drinks at home, went to the toilet at the last possible moment and I didn’t take a drink for him in the car like most people would on a hot day. We… Continue reading When men have walked on the moon, why is lunch out so hard?
When you become a parent to a disabled child you soon realise that life is never going to be the same again. I am not saying it is worse, but it is undoubtedly harder. And not for the reasons that most people would think. We are conditioned to feel “grateful” and we start to feel… Continue reading The Gratitude Trap.
Some “friends” will disappear, but those who stay, and those who choose to be part of your new world, will be the most amazing friends a person could ever know. You will ache to depths that you didn’t know possible but you will also know unimaginable joy at things others don’t even see. No matter… Continue reading 10 things you may not know about parenting a disabled child.
This time last year every day began with two questions from my son. Where are we going today? Do they have a toilet I can use? That second question would have me struggling to hold back the tears. Because the answer was generally “no”. But now each day it is even harder because he no longer asks the… Continue reading When acceptance is wrong.