I might look strong. I might always have a smile. I might seem to be achieving things that you can’t imagine doing. I might seem to have courage. I might seem to be okay. But I am not. My body aches from years of lifting another person. My smile is fixed because it is easier than… Continue reading Fake it ’til you make it?

“When you wish upon a star Makes no difference who you are Anything your heart desires Will come to you.“ I am a dreamer. I believe in magic. And I love all things Disney. I have taken my younger son to Walt Disney World twice. Both trips were just before he had major surgery. And… Continue reading When you wish upon a star…

When national tragedies happen it sometimes makes many disability campaigners question whether they should pause in what they are doing for a while. Is the need for accessible toilets something I should still be pushing when so many have been injured or lost loved ones? But tragic events will keep happening and we should remember… Continue reading Is it okay to share “disability issues” after so many tragic events?

Something you might not know about unpaid carers is that there is always “more”. Always more to do, more to achieve, more to work towards. More calls to make, more e-mails to send, more paperwork to do. More things to consider, more research to do, more questions to answer. More people treating your loved one badly, more battles,… Continue reading Caring – There is always “more”.

I recently let my son down. Not because I wanted to and not because I didn’t care. He was due to have a big operation which would impact greatly on him and I wanted to make the weeks before it fun so that he could have great memories of days out. Half term week would… Continue reading Parental guilt.

Right now I am beyond caring for political squabbles and point scoring. I am beyond caring for the belittling of each other. Because I am caring for a 10 year old boy, lying in a hospital bed, recovering from a traumatic operation. He cannot sleep due to constant sickness and we didn’t sleep much the… Continue reading I’d rather trust a nurse.

Recently I heard a suggestion that I had “forced” a local theatre into agreeing to include a Changing Places toilet as part of an £18.3million refurbishment project. Really? They are gutting the place, increasing the number of seats as well as the number of spaces for wheelchair users, purchasing new equipment and probably buying new artwork for the walls… Continue reading This is my fight song!