Seeking carers for your disabled child is like seeking Mary Poppins’ even more magical sibling. With the added warning that they will get a range of bodily fluids shared, must have enormous patience, must be prepared for extreme challenges at times, must listen to the words your child may not be able to say, or… Continue reading Finding Carers For Your Child
When you watch Children In Need do you wish that you could do more? Do you see those little faces and wish you could change their lives today? Because I know two little girls who need your help. Ava and Abbigail need their mum back. She is there, in the house. But she isn’t in… Continue reading This Children In Need day…
My name is George and I am 24 years old. I am fully continent but have always had to wear nappies and pads whenever I go out of the house just because of a lack of toilets with hoists available. How would that make you feel? Think about it for a moment. I have quadriplegic… Continue reading Why not just wear pads?
In Cornwall, you are never far from a beach. But, for some people, the beach might as well be a million miles away. If you can’t stand or walk, how do you get across the soft sand? People will tell you that many beaches have “special” chairs available to hire, but how do you transfer… Continue reading When do you start planning a day out?
I was blown up in Iraq in 2003. I was left paralysed and bladder & bowel incontinent. Disability really can and does happen to anyone. However, I had one good arm left and was able to manage my bladder and bowel needs very well using Conveen sheaths and rectal irrigation along with anal plugs. Life… Continue reading Iraq War Veteran, Changing Places user.
Right now, I am not entirely sure what went wrong to leave a child with a costs order against him. But I have some good people who are helping to unravel it. People who believe 100% that we were right to bring the case. People who know that it should have ended differently. People who… Continue reading Thoughts on the Flambards case.
My son would not need anyone to tell him that we should be responding to climate change as though our house is on fire. He would not be able to sleep and he would not be able to rest if he knew. Which is why I will not tell him. I realised earlier that I… Continue reading Why I love the school strikers.
What is your expectation of a simple family day out? Maybe a walk, a trip to a park and a spot of lunch? And you would anticipate it all being rather fun, maybe even relaxing if your child is a bit older. It seems reasonable! We parked and headed along a well loved and popular… Continue reading AIBU? (Yes, I read Mumsnet!)
I am fed up with hearing that “in an ideal world everything would be accessible, but it isn’t an ideal world“. What the heck does that mean? What an enormous load of nonsense!!! Believe me, disabled people already know that the world is far from ideal. Disabled people live it every single day! You saying… Continue reading What is this “ideal world”?
When I first asked Newquay Zoo to improve their toilet facilities, I didn’t get quite the response I hoped for. But then they learned. They talked to users. They listened. And they prioritised access for all. Take a look! From this tiny room where we couldn’t get in and close the door behind us… To… Continue reading Thank you, Newquay Zoo!