Today, I bottled out. I was not brave enough to go out with my child. Not because I am a shy person, not because of the weather and not because he didn’t want to go out. Simply because I was afraid that my beautiful brave boy would get hurt. If you read ‘Where do we go… Continue reading Afraid to go out.
When you are trying to campaign for something which matters to your child there is a fine line where you have to decide how involved your child can be. For me, that line is that Adam must not suffer any harm, physically or emotionally. It makes it difficult to decide how to approach businesses and… Continue reading Where do we go from here?
Dear Walt Disney World, I never thought I would say goodbye to you, but I have to stop hoping. I have always loved you and will always remember you fondly, although also with sadness at what might have been. I visited pre-children, honeymooned with you, brought my first son, then my second. You have given us all magical… Continue reading Goodbye Disney Dreams.
Adam is 10 years old and has physical and learning disabilities. Yet he sees and knows so much more than most of the people who make decisions about what is needed. It is that straightforward. Without a changing bench and ceiling hoist, Adam (and hundreds of thousands of others) cannot use a toilet when out… Continue reading When a child knows…
Concerns about equal access for all might not affect you. YET. “The disabled”. The largest minority group of which any one of us can become a member of at any time. It isn’t a club that many would wish to join. There isn’t an eager queue. Yet, once you are in, you are generally in for the long haul.… Continue reading Does it matter?
I really don’t like the term “special needs”. There, I have said it! I feel like I should duck and hide because many will disagree, but this is my feeling to share. My son does not have “special needs” and I am not a “special parent”. No, he can’t sit unaided, or stand, or walk, or feed… Continue reading Not “special”.
I wish I had studied the law. If I had known the direction my life would take I would definitely have studied law. As it is, I am floundering in a world which subtly excludes my family. For example, I know that direct discrimination is where a person is treated less favourably, because of a disability,… Continue reading “Treated less favourably”