Some days it is hard to keep strong, especially when people ignore you when you write to them or when they try to skirt round it like it doesn’t matter.
It can feel very lonely, especially when you are stuck on the outside, unable to enter. Even more so when others can go in so easily.
It is exhausting. Many parents of disabled children will agree that having to constantly argue for their child’s right to services, education and to social activities is where most of their energy is spent. These are people who are already doing way beyond the regular demands of parenting, which I am sure we all agree is hard enough.
And sometimes it is harder still to support your child in their wish to bring change. You fear that they might get hurt and you will not be able to take it away.
But we can’t protect them from everything and doing nothing is not going to improve anything.
Adam just wants to be able to go out and be a child.
That really isn’t asking too much. Is it?
What if it was your child needing a hoist assisted toilet? Would you accept that they just couldn’t go out?
Or would you tell that little dude how proud you are of them and do all you could to make them proud of you?
Adam, you so totally rock!
The Equality Act is there to protect disabled people from “less favourable treatment”. Much like I am here to protect my son from it.
Maybe it is time for us to team up?