Am I worth less than you? Do I not matter? Do I not have a place in this world? I wake every day and want to do the same things as you. I want to go to the same places as you. I want to live a good life. I want to fit in. I… Continue reading When did things change?
Author: Ordinary Hopes
Keeping Us Out.
How badly do some places want to keep disabled people out? How much will they spend to do so? Will it be more than it would cost to just enable us to come in? These are the questions currently going through my mind. My son is eleven years old and a full time wheelchair user.… Continue reading Keeping Us Out.
My Disney Divorce.
Breaking up is never easy, but this one really hurts. I could never imagine me not loving Disney, but, right now, all the happy memories are tainted by my new understanding of just how little my disabled son means to such a major organisation, and I feel bad for loving it so. Of all the… Continue reading My Disney Divorce.
Dear Tesco,
I know that you mean well by adding your new sign to the toilet doors but I want you to understand just how hurtful it is to my son. It must be terrible to have people look at you with judgement in their eyes simply because they don’t think you look “disabled enough” to use… Continue reading Dear Tesco,
Good things do not come to those who wait, and wait, and wait…
The ‘Equality Bus’ is not coming. It broke down many miles away and no new service is planned. All those who wished to board are asked to wait patiently. There are plans to consider getting it moving at some point, but probably not this year. Maybe not next year either – it is, after all, a complicated business! I keep… Continue reading Good things do not come to those who wait, and wait, and wait…
“What’s ‘normal’ anyway?”
I hate it when people say that to me. I know they mean well but it feels as though they are saying there is nothing unusual or difficult about my son’s life. When there clearly is. Sometimes I am sad about the things he struggles with. Sometimes I am sad that we can’t just go out… Continue reading “What’s ‘normal’ anyway?”
Is there room in your loo for a boy like me?
The boy had a chair ◊ and short funky hair, And snazzy blue shoes ◊ which he just loved to wear. How the boy laughed ◊ and how the boy grinned, As he raced in his chair ◊ and moved like the wind. And how the boy wailed ◊ and how low the boy sat, The need came so wildly… Continue reading Is there room in your loo for a boy like me?
Children should not be scared to go out.
I have this little boy called Adam. He is very sweet and very kind. He is loving and giving, And scared of many things. Because life has shown him a harsher side than it shows to most 10 year old children. He has had many surgeries. He has known much pain. He has cried with… Continue reading Children should not be scared to go out.
When men have walked on the moon, why is lunch out so hard?
“Have they got a bathroom I can use?” Today we ventured out for lunch with friends. We did everything we could, we timed drinks at home, went to the toilet at the last possible moment and I didn’t take a drink for him in the car like most people would on a hot day. We… Continue reading When men have walked on the moon, why is lunch out so hard?
The Gratitude Trap.
When you become a parent to a disabled child you soon realise that life is never going to be the same again. I am not saying it is worse, but it is undoubtedly harder. And not for the reasons that most people would think. We are conditioned to feel “grateful” and we start to feel… Continue reading The Gratitude Trap.

