My Disney Divorce.

Breaking up is never easy, but this one really hurts. I could never imagine me not loving Disney, but, right now, all the happy memories are tainted by my new understanding of just how little my disabled son means to such a major organisation, and I feel bad for loving it so. Of all the… Continue reading My Disney Divorce.

Good things do not come to those who wait, and wait, and wait…

The ‘Equality Bus’ is not coming. It broke down many miles away and no new service is planned. All those who wished to board are asked to wait patiently. There are plans to consider getting it moving at some point, but probably not this year. Maybe not next year either – it is, after all, a complicated business! I keep… Continue reading Good things do not come to those who wait, and wait, and wait…

“What’s ‘normal’ anyway?”

I hate it when people say that to me. I know they mean well but it feels as though they are saying there is nothing unusual or difficult about my son’s life. When there clearly is. Sometimes I am sad about the things he struggles with. Sometimes I am sad that we can’t just go out… Continue reading “What’s ‘normal’ anyway?”

Is there room in your loo for a boy like me?

The boy had a chair ◊   and short funky hair, And snazzy blue shoes ◊   which he just loved to wear. How the boy laughed ◊   and how the boy grinned, As he raced in his chair ◊   and moved like the wind. And how the boy wailed ◊   and how low the boy sat, The need came so wildly… Continue reading Is there room in your loo for a boy like me?

Children should not be scared to go out.

I have this little boy called Adam. He is very sweet and very kind. He is loving and giving, And scared of many things. Because life has shown him a harsher side than it shows to most 10 year old children. He has had many surgeries. He has known much pain. He has cried with… Continue reading Children should not be scared to go out.

When men have walked on the moon, why is lunch out so hard?

“Have they got a bathroom I can use?” Today we ventured out for lunch with friends. We did everything we could, we timed drinks at home, went to the toilet at the last possible moment and I didn’t take a drink for him in the car like most people would on a hot day. We… Continue reading When men have walked on the moon, why is lunch out so hard?