When caring causes disability…

The last few weeks/months have been painful. I have struggled to move. Sitting has been hard, standing even worse, and I have been walking like I just pooped my pants. (LIKE!!! – I haven’t really!) This is the reality for a full time carer to a disabled person. I don’t work office hours, heck, there… Continue reading When caring causes disability…

Our first visit to The Lost Gardens of Heligan.

We have wanted to visit The Lost Gardens of Heligan for some time. We have only ever heard good things about the place and everyone raves about the cake. But, without a Changing Places toilet, we just couldn’t visit. So we asked them to install one. And they did! No business case to prepare. No… Continue reading Our first visit to The Lost Gardens of Heligan.

Why my 11 year old served court papers to Flambards theme park.

You might have seen us on the news, or heard us on the radio, discussing the legal action that is being taken against our local theme park, Flambards, in Helston, Cornwall. They advertise using the slogan “The best day of the week” and it almost is, unless, like my son, you need a toilet with… Continue reading Why my 11 year old served court papers to Flambards theme park.

“Reasonable adjustments” – does anyone know what they are?

The Equality Act brought together many separate pieces of legislation into one single Act, designed to protect the rights of individuals and create equality for all. Which sounds lovely. The Act states that there is a duty on organisations to make “reasonable adjustments” if a person is placed at a substantial disadvantage due to disability… Continue reading “Reasonable adjustments” – does anyone know what they are?

Sainsbury’s – the excuse list…

This is a copy of the “reasons” that Sainsbury’s gives as they refuse to improve their toilet facilities in their Penzance store, despite knowing that my son, and hundreds of thousands of people across the UK, cannot access them. This child had a bad experience in their Penzance store, which continued to affect him long… Continue reading Sainsbury’s – the excuse list…

Sometimes it is all too hard…

Today I was not a good parent. My child was fed, cuddled, entertained and loved. Every one of his physical needs were met, but I struggled to listen to his emotions and I struggled to empathise. Because it isn’t easy to really listen, let alone try to work out the problem, when someone is shouting… Continue reading Sometimes it is all too hard…

I disappeared in January…

I disappeared in January. But not because I went back to the North Pole. I disappeared because I couldn’t face January I had a job to do last year and I did not complete it. I was supposed to enlighten people, make them care, and leave no unfinished business. Thanks to the wonderful team at… Continue reading I disappeared in January…