It is an odd term. I have always cared for my family, even before having a child with higher than usual care needs. “Carers” are people I can pay to come to my home to help support my son and to support me in caring for him. Then they go home to eat in peace, relax,… Continue reading Family Carers.
Time for Change.
“This is how it has always been done” often just means that nobody has questioned whether it is working, let alone asked if it could be better. When people question the standard and are told “it meets the minimum requirement” does it really mean that things are okay? Or might the standard be too low? Document M (the legal… Continue reading Time for Change.
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What happened to me?
I was sleeping in bed when I was awoken by Tom Hardy gently kissing me. He asked what I wanted… And then duly went to the kitchen to cook me porridge! What has happened to me??? When did I get this boring??? It was clearly a dream at the time – I was living in the… Continue reading What happened to me?
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How would you feel?
How would you feel if every time you went somewhere you were told that they were not expecting people like you? What if you took your baby with you to a local tourist attraction to find there were no changing facilities and no toilets large enough to take your pushchair in with you? Do you… Continue reading How would you feel?
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The alternative “Dear Zoo”
We love the Rod Campbell book ‘Dear Zoo’. It is a fabulous book and it gave us hope when I wrote to the zoo… I wrote to the zoo to ask for a toilet (29th February 2016, to be precise) They didn’t reply. I was sad. A friend posted on their Facebook page. She’d had to change… Continue reading The alternative “Dear Zoo”
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Wheelchairs are Awesome!
When you see a child using a wheelchair, you might feel sad for them. But they are, most likely, not sad at all. International Wheelchair Day is intended to be a celebration of the positive impact a wheelchair has on the life of the user. Some people might think that is an odd thing to celebrate. I… Continue reading Wheelchairs are Awesome!
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When you say nothing at all…
There is something rather special about discovering that people value you. I was quite surprised to open my e-mails and find one saying that, not only had I been nominated for a ‘Stars of Cornwall Award’, but I had been shortlisted as a finalist in the ‘Star Carer’ category. I don’t know who nominated me, only that the nomination… Continue reading When you say nothing at all…
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The future?
For so long my greatest fear was that I might lose my son, but now it is that he might lose me. His health has improved so much and I am truly grateful for that because for so many years the fear of losing him was an unbearable pain. My pain. But losing me would cause him a pain beyond his… Continue reading The future?
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Reminders…
I like social media. But some days it brings a sting. The Facebook reminder of previous years can sometimes hurt and today was a day where I wished I hadn’t gone online. Adam used to love going to Paradise Park and we used to visit frequently. It is open all year round and was brilliant… Continue reading Reminders…
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Sh*t happens!
If you need a laugh, watch this video. I laughed so much the first time I saw it. And the second! When you have kids it happens! And it happens in restaurants, at the supermarket, in bed and at all sorts of inconvenient times. But how would Jonathan Ross and the others in this video cope if it was their… Continue reading Sh*t happens!
Ordinary Hopes 