Christmas shopping in the city centre has always been something I looked forward to. As a child it was a big treat to stay up late, go to Truro in the dark and see all the beautiful lights. But I don’t take my son because it isn’t fair to take him. To get a parking… Continue reading Is 900 a big number?

We were excited at the idea of watching Pete’s Dragon at the cinema. We wanted to see the film and it was a bonus that we could see it for free as part of the Into Film Festival. A free cinema trip is a welcome joy for any parent! However, last night Adam started to worry. There are… Continue reading The big faker!

Did you watch Children In Need and shed tears for some of those children? Did you wish that no child had to endure pain? Did you wish you could do something to help a child right now? Some days we can’t make everything better for everyone but I know a child who you can do… Continue reading Helping Harvey.

I know it is too early to start using the “C word” but I keep being reminded that we are mid November and December has a habit of following November. Making Christmas special is really hard when you have a child who is physically limited and who is not developmentally able to do what most… Continue reading The “C” word…

We all worry about our children. We worry that they will be unhappy or might not make friends or might struggle with all manner of things. Will they read at the “expected time” and to the “expected level”? Will they be able to “keep up” with the other children? Will they be “good enough” at… Continue reading Magic Milestones!

Am I weird? Am I unusual? Or do I just have a different appreciation of things? The word “obsessed” has been used! Because the humble toilet is a much under-appreciated thing. As a rule, people don’t love them, they don’t talk about them and they most certainly don’t celebrate them. But there is always an exception… Continue reading Why?

Some days it is hard to keep strong, especially when people ignore you when you write to them or when they try to skirt round it like it doesn’t matter. It can feel very lonely, especially when you are stuck on the outside, unable to enter. Even more so when others can go in so easily. It is exhausting. Many parents… Continue reading “You so totally rock, Squirt!”

Years ago I would read “inspirational” stories of carers and be in awe of how much of themselves they devoted to another person. I would read of their struggles, the hospital stays, the sleepless nights, the physical and emotional strain and the total willingness with which they did everything and know that I was not reading… Continue reading Struggling to care…