When you become a parent to a disabled child you soon realise that life is never going to be the same again. I am not saying it is worse, but it is undoubtedly harder. And not for the reasons that most people would think. We are conditioned to feel “grateful” and we start to feel… Continue reading The Gratitude Trap.
Some “friends” will disappear, but those who stay, and those who choose to be part of your new world, will be the most amazing friends a person could ever know. You will ache to depths that you didn’t know possible but you will also know unimaginable joy at things others don’t even see. No matter… Continue reading 10 things you may not know about parenting a disabled child.
This time last year every day began with two questions from my son. Where are we going today? Do they have a toilet I can use? That second question would have me struggling to hold back the tears. Because the answer was generally “no”. But now each day it is even harder because he no longer asks the… Continue reading When acceptance is wrong.
Article 3 of the Human Rights Act states that we have “freedom from torture or inhuman or degrading treatment.”
There are laws to protect us all.
Except one group, who seem to have no protection at all.
I might look strong. I might always have a smile. I might seem to be achieving things that you can’t imagine doing. I might seem to have courage. I might seem to be okay. But I am not. My body aches from years of lifting another person. My smile is fixed because it is easier than… Continue reading Fake it ’til you make it?
“When you wish upon a star Makes no difference who you are Anything your heart desires Will come to you.“ I am a dreamer. I believe in magic. And I love all things Disney. I have taken my younger son to Walt Disney World twice. Both trips were just before he had major surgery. And… Continue reading When you wish upon a star…
When national tragedies happen it sometimes makes many disability campaigners question whether they should pause in what they are doing for a while. Is the need for accessible toilets something I should still be pushing when so many have been injured or lost loved ones? But tragic events will keep happening and we should remember… Continue reading Is it okay to share “disability issues” after so many tragic events?