The poor, dear “fully disabled toilet”.

This is part of a response from a business I contacted to discuss the need for toilets with a hoist and changing table. “I am afraid that we don’t currently have a toilet with a hoist and adult changing bed but we do have a fully disabled toilet.” Yes, that is the problem! Your toilet is fully disabled -it… Continue reading The poor, dear “fully disabled toilet”.

My Disney Divorce.

Breaking up is never easy, but this one really hurts. I could never imagine me not loving Disney, but, right now, all the happy memories are tainted by my new understanding of just how little my disabled son means to such a major organisation, and I feel bad for loving it so. Of all the… Continue reading My Disney Divorce.

Good things do not come to those who wait, and wait, and wait…

The ‘Equality Bus’ is not coming. It broke down many miles away and no new service is planned. All those who wished to board are asked to wait patiently. There are plans to consider getting it moving at some point, but probably not this year. Maybe not next year either – it is, after all, a complicated business! I keep… Continue reading Good things do not come to those who wait, and wait, and wait…

Is there room in your loo for a boy like me?

The boy had a chair ◊   and short funky hair, And snazzy blue shoes ◊   which he just loved to wear. How the boy laughed ◊   and how the boy grinned, As he raced in his chair ◊   and moved like the wind. And how the boy wailed ◊   and how low the boy sat, The need came so wildly… Continue reading Is there room in your loo for a boy like me?

When men have walked on the moon, why is lunch out so hard?

“Have they got a bathroom I can use?” Today we ventured out for lunch with friends. We did everything we could, we timed drinks at home, went to the toilet at the last possible moment and I didn’t take a drink for him in the car like most people would on a hot day. We… Continue reading When men have walked on the moon, why is lunch out so hard?

Thank You Exeter Services!

Traveling is not easy when you have to plan all your drinks and stops around the few Changing Places toilets on the motorway network. One of our favourite service stations was always Moto at Exeter, but when my son became too heavy for me to lift to the toilet, we could no longer stop there. If Adam can’t use… Continue reading Thank You Exeter Services!

Is that really me?

A few days ago I took part in a live discussion on the Victoria Derbyshire show which was being filmed nearby. It was an opportunity for local people to share the issues which matter to them as we head towards a General Election. In Cornwall the big issues were not Europe or immigration, but included… Continue reading Is that really me?

Time for Change.

“This is how it has always been done” often just means that nobody has questioned whether it is working, let alone asked if it could be better. When people question the standard and are told “it meets the minimum requirement” does it really mean that things are okay? Or might the standard be too low? Document M (the legal… Continue reading Time for Change.